I am SO glad you found the right doctor. It took me two plus a NP before I found out what was wrong with me. The (female) Uro-Gynecologist examined me for just a couple minutes, sat up and matter-of-factly stated the diagnosis (pelvic floor spasm). I couldn’t believe it.
The first doctor (male, regular gyn) had not. a. clue. Virtually insisted that my twinging, spasming, miserable pain had to be from a UTI and prescribed an antibiotic and anti-spasmodic, despite the urine test being fine AND me telling him, I’ve had plenty of UTIs and this is different! He did no exam whatsoever, btw. The antibiotic of course did nothing and the prescription stuff that turns your pee orange gave me horrific leg cramps at night. I’d wake up in agony and have to massage and walk around for 20 minutes.
The NP did do an exam and told me she thought it was a UTI or a yeast infection. Seriously! I’ve had those too, of course, and knew damn well it wasn’t THAT so I didn’t even bother filling the prescription. I do think I took another round of antibiotics just in case.
Finally, the UG knew, and right away. She prescribed PT with a specialist. Luckily there was one at an office ten minutes from home. The mistake this doc made, though, was not telling me what the PT entailed. You could have knocked me down with a feather when the therapist instructed me to remove all clothing from the waist down and get under a sheet. And then next thing I knew, here came the KY. She wound up embarrassed that I hadn’t been told in advance! (Call me stupid but I thought it would be external massage and stretching)
At any rate, the PT worked, thank God. I don’t know if I or my boyfriend was more relieved since I’d told him, no canoeing until/if get this problem sorted (it got 10x worse afterwards). The PT was weird and slightly unpleasant but I learned a LOT. Who knew we women carried stress in our pelvic floor!
I also learned that this sort of thing is more common in equestrians. The therapist definitely thought I should just, you know, quit the silly horsing around but I explained that was NOT an option. Instead I learned how to really, really focus on breathing and relaxing all my muscles. I still have to be sure I breathe right when cantering.
I’ve been fine for two years now, knock on wood, but it was definitely the most bizarre and frustrating medical condition I’ve experienced. I hope anyone who experiences problems in this area gets themselves straight to a UG, because the average gyn seems not to know a damn thing.