[QUOTE=Derby Lyn Farms;5525191]
I realize fibromyalgia is what it is, and I know there is something underlying. Just have to figure out what that is.[/QUOTE]
This is the big conundrum. Having been to the Mayo Clinic twice and visiting countless doctors {I have a whole litney of other medical problems along with my fibro, and which also tie-in and affect my fibro…} all over the state of WI since I was 15 years old (I am 22 now), we have come to discover that finding a doctor who knows, actually KNOWS, about and how to treat fibromyalgia, is like finding a sparkly, rainbow-colored unicorn.
My recommendation to you is to read “From Fatigued to Fantastic!” 3rd Edition by Dr. Jacob Teitelbaum. The protocol in his book helped cure me of my Chronic Fatigue Syndrome after two long years. Besides CFS, he also covers fibromyalgia, brain fog, achiness, etc. [You can also visit his site at http://www.endfatigue.com]
I see that you live in MI…I was lucky enough to find a top-notch PT, rheumatologist and a brilliant women’s doctor in WI who knows Dr. Teitelbaum and also follows more of a holistic approach to combine with traditional Western medicine. It seems that Eastern European doctors are much more open and receptive to conditions, like fibromyalgia, that are extremely challenging to treat, as they constantly read and educate themselves about the newest studies, medications, etc. Almost every single doctor I’ve been to, which is an impressive list of 50+ specialists for various medical problems, are very close-minded. If your condition is more “out-of-the-box” and they didn’t learn it in medical school, they’re not interested.
I wish I could recommend some medications for you, however, everyone’s bodies respond differently. I have tried nearly every medication that people have listen on this forum, with the exception of Lyrica and Cymbalta, as I am extremely sensitive to medications. Nothing seems to work for me except 1-3 mg of Xanax, which dulls the fibro pain once I get into the 6-9 range.
Try to stay as active as possible. I know this might seem absolutely crazy, but it really helps. If you are able, do low-impact exercises like the elliptical, swimming, yoga, tai chi, etc. They key is to do everything in moderation…especially on the days when you are feeling halfway decent, as you tend to go overboard.
Having just seen my rheumatologist, she said that out of her 170+ fibro/RA patients, this summer has been absolutely killer due to the high heat, high humidity and dew points. For me, spring and fall are the worse seasons, due to the temperature differences between day and night. The worse temps seem to be in the range of 45-65 degrees. The arctic WI winters also wreak havoc on my fibro and joints overall. Drop in barometric pressure, such as a pending cold front or thunderstorm also really flare up my fibro. I’m more accurate than a weatherman in predicting the weather! ;p
On the horse front, the best thing that I found for me is riding a quiet horse who has great self-carriage and doesn’t pull at all. That is an absolute god-send that has allowed me to start up/continue riding.
I totally commiserate with you. If you ever want any more info, please feel free to PM me. My dad has spent the past 7 years researching these medical problems and taking me to numerous doctors and specialists. I would love to be able to share our knowledge if it would be beneficial to a fellow sufferer.
Take care. <3