Sleep issues. HELP!

Forgive me if I’ve missed it, but …has he/would he consider therapy? It sounds like he has had a lot of difficult things to get through in his life and may not know how to work through them. Cognitive behavioral therapy could be very helpful to identify thoughts that are true or have value, and thoughts that we think are true due to anxiety but they’re not.

It sounds like you guys are in an area with few medical providers. I have NO firsthand experience with any of the online help services, but could be worth a try. Psychology Today’s website also has a searchable database of therapists that you can filter by location, specialty, insurance, etc.

ETA: not saying that there’s not a physical issue, just that our mental health is more tied up with our physical health a lot more than most people realize.

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Can he try different mask types?

I couldn’t sleep with a regular mask, because if I tried to sleep on my side, it would shift, leak air and whistle. But the nasal pillows were great. Nothing big on my face, it didn’t shift, and no problems with getting air.

what do you use? DH and I have been trying for years to find him the “perfect” pillow for his apnea.

I actually got off the CPAP when I lost weight several years ago. Sorry, don’t remember what kind they were, but I think ResMed.

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Since I posted this, I have talked with one of my best friends who is a general practitioner. She agreed with me that going to the sleep specialist to do the sleep test given that we already know the root cause and there isn’t much that can be done is getting into silly territory.

With that said, I figured why not give melatonin a try since its cheap and easy to get. I haven’t given it much thought because I am GREAT at falling asleep. I have been taking the low end dose now for almost two weeks, and while I dont need it to fall asleep, I think I may be getting a little better quality sleep? It’s hard to tell, but I feel slightly better upon waking up in the mornings. Still need a mid day nap and while the need is there, it also seems a little less pronounced. Im going to keep going with it for now anyways.

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Well, he went through a tough time a few years ago, and did get some therapy. I guess it was helpful- he got over it I guess. But yes, he does have troubles, self inflicted for the most part. I dunno much about it, I guess I don’t personally take on the world’s ills like he does. He tends to hang on to stuff that bothers him. He does like to torture himself about things he has no control over, and nothing is ever really good enough in his life. I think that this sort of stuff keeps him troubled… more than I know. He trusts no one (well, maybe me more than anyone else). He thinks that this PT is just trying to sell a CPAP machine. His thinking is… when he did the first “sleep test”, at home, with the deal on his finger to test his sleep (???), he didn’t sleep. He says he was awake all night long. Then the PT told him that he had “moderate” sleep apnea. He said that he had not slept. How can you have sleep apnea if you are not asleep? The PT said that it showed that he had it. So then he thinks she’s a sham. Then he also says that he thinks she knows what she’s talking about at other times. But it’s a good question… how can she diagnose sleep apnea if he’s not asleep?

I’m leaning more towards treating insomnia. I’m thinking a try at hypnosis. He does not believe that people can truly be hypnotized, I have explained to him that it does happen, and it is a real thing. And I think he’d be very susceptible (not that I’m a specialist myself, but just a hunch). I’d like him to go to bed, and give him the cue installed, snap my fingers 3 times, and he’d be out like a light (maybe). But that’s going to mean that the attempt to use the CPAP is over I guess. He hasn’t quit yet.

It’s a very small mask, just goes over the nose. It was the slightest one, the lightest one, the least offensive one. But he can’t sleep when it’s on… other than maybe for a doze for a few minutes. The lack of sleep makes him irritable, which then rubs off on me. But I suffer much less than he does with this situation.

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Well, this probably isn’t the right solution, but works for me:

I found the antihistamine in NyQuil gave me the best night’s sleep. Looked it up: doxylamine succinate 6mg. Not the usual antihistamine, but I found it in Unisom Sleep Tabs – except they are 25mg! So I split the pills, or actually semi-crush them, because 1/8th of a 25mg tab works for me, so 2-3mg.

I noticed that NyQuil has increased it’s antihistamine since I last used it, and it now contains 12.5mg doxylamine succinate.

CBD, melatonin, magnesium… none of those work like this. I figure I am okay with an antihistamine because my doc will recommend Claritin daily for half the year for post nasal drip, and I only take this when I can’t seem to sleep.

YMMV!

If he has sleep apnea, he really needs to treat that to get a handle on the blood pressure. I am slim and fit, and I was diagnosed with sleep apnea at age 40. One of my daughter’s was also diagnosed, but hers resolved with tonsil/adenoid removal. Other members of our family have been tested and do not have it, and there are other treatments besides CPAP. I couldn’t tolerate CPAP either, but I did RFA ablation of my turbinates, a quick outpatient procedure, and also have a dental sleep apnea mouth guard, which is much easier to tolerate and works well for many people. It makes a huge difference in terms of energy level, mood, blood pressure, and even sleep anxiety.

I’ve had dreadful sleeping for many years.

I mainly sleep on my side or on my belly sometimes.
I had to have a sleep study done but I couldn’t sleep in the positions I normally do as the machine would make noises.
I had to keep rolling on my back.
It came back as slight sleep apnea but I disagreed with that.

If your hubby normally sleeps on his side or belly then the sleep machine might not be the thing for him.
I’m not a Dr of course.

I have found that if I take melatonin and wear amber glasses it really helps get my brain into ‘sleep time’.
Because I spend a lot of time on the computer the white light makes the brain think I need to be awake.

Wearing the amber glasses when on the computer is telling my brain it’s time for sleep.

I don’t know if that is of any help.

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this does a reasonable job for me, without the unwanted side effects of diphenhydramine (which you shouldn’t regularly take for sleep anyway). And yes, I have to halve the pills too. But, sadly, after a couple of nights, it doesn’t do the job anymore, so it’s something I have to cycle through, with a good week+ in between

The high blood pressure issue has been solved with a low dose medication, which will be further reduced soon, and probably removed entirely, if we can get past the lack of sleep issue. Because the lack of sleep issue truly is the root of the problem, we think.

But my question remains… Can sleep apnea be diagnosed in the overnight test with the sensor on the finger, if the patient is NOT ASLEEP all night long while the test is conducted? Is this therapist just trying to sell a CPAP machine for $3000?

Do you have a proper sleep study in the hospital or accredited sleep lab?
If you do, your insurance will pay for the machine and all supplies now and later.

No insurance to cover this. We would pay for it. No, the test was done at home. The RT supplied the test device, to record “events” while asleep. But he says he did not sleep AT ALL with the device on his finger which was supposed to record whatever it was supposed to detect. Apnea events? Then the RT announced that he had “moderate” sleep apnea. 17 events per hour, apparently. This is why he is skeptical about this RT. She seems like a nice person, and knowledgeable. But he (especially) is always skeptical about people’s motives. And this seems to be questionable.

You can get a Bluetooth headband that he can hear and you can not.

He can then listen to white noise or podcasts or music or whatever on his phone. Thst should help with his brain not turning off.

I had to take a second sleep test about a year ago because my state changed the regulations for insurance. I was given the at home test and I didn’t like it at all. My misgivings were the opposite of your husband’s because I was so used to sleeping with a CPAP that I was actually scared to try to sleep without it on. However, I, too, felt like I hadn’t slept at all. I think what happened with me, and what probably happened with your husband, was that I dozed, and didn’t even realize that I was falling asleep and waking up. It just felt like I was awake all of the time. I wonder if that is what happened with your husband?

As for the mask, nasal pillow thing, I have a Res Med 10 machine. I found that the headgear on many of the newer models for the nasal pillow were extremely irritating because the cheek pieces came too close to my eyes, and the tube went over the top of my head. I use an older model headgear called Mirage Swift II, which solves the two things that irritate me. It’s constructed so that the cheek pieces fit lower on your face, and the tubing comes out of the side. You have the option to decide which side you want it to come out of, in case you are a side sleeper. It’s not as spiffy looking as the newer one, but who really cares about that? Here’s an example of what it looks like.

That looks like what he has. He left it off entirely last night, and slept pretty well. I quiz him each morning for a report LOL. Actually, I can tell how he slept quite quickly without asking…grumpy, negative and depressed means “not well”.
I think he’s going to change therapists, he is losing faith in this one. He thinks she’s a scam artist. Apparently, it’s her husband who actually is the RT, but she sees the clients. They work out of their house. Scam? Maybe so.

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Ohhhh, I don’t like the working out of their house thing, either. It may be too early, but maybe you should look, at some point in time, into the Inspire. You know, I wonder what would happen if he got one of those watches that tell you how you are sleeping? It might give you some idea of a direction to go in.

This:

… is said to be better at monitoring 02 and pulse.

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Slept well again last night, without using the CPAP at all. Looks like it is going back to the “RT”. who loaned it on trial. He is apparently aware of the watch option, and the ring is interesting too. The research he has done already has turned these options up, apparently. (Once he gets his teeth into a subject, he pretty much tears it apart with research, especially when it concerns his health - he is a true “health nut”.)
IDK what has caused this issue. Maybe forced inactivity in mid winter during that cold snap -30C last month? Causing insomnia? Then he works himself up into a lather worrying about it, anxiety… causing a vicious circle and cascade effect of lack of sleep, high blood pressure and depression? Can it all be related? IDK, it’s not my field of study. But if he truly CAN’T sleep with the most innocuous CPAP mask on (and he can’t), it isn’t helping. He’s a pretty sensitive guy. With what he’s gone through in his life already, it’s amazing he’s functional at all. Very intense overachiever. And sometimes his own worst enemy.

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f he has sleep apnea, he must treat it to control his blood pressure. My grandfather was diagnosed with sleep apnea five years ago and uses CPAP devices. Members of our family have been tested and found to be negative. CPAP machines can significantly improve energy levels, mood, blood pressure, and sleep anxiety.