I’ve got another two weeks before my appointment with a neurologist. In the meantime let’s play the internet diagnosis game. Excruciatingly long post.
My symptoms began @ 5.22.21. First symptom was knee pain in right leg. No noticeable swelling, heat or discoloration. Pain was of course the worst standing up from a chair and going up and down steps. Pain continued for several days and progressed to include a burning/tingling sensation down my shin. Saw my PCP a nurse practitioner at this point. Knee sore to palpitation. PCP ordered knee X-ray and Motrin. X ray clear. PCP ordered PT pending clear x ray.
Over the weekend the tingling / burning sensation intensified. Now pins and needles feeling and all the way up my leg from sole of foot to groin. I’m freaking out at this point. That Tuesday (day after Memorial Day) I go to ER. Ultrasound of leg, no indication of blood clot. X ray of lumbar area. Degradation of facets noted. ER gives me systemic dex shot in hip, suggests PPI for stomach / all that Motrin and sends me on my way. PT delayed due to worsening of my condition.
That Thurs I see PCP. She scripts prednisone and Robaxin. By this point lower back/hip pain is bothering me despite 800mg of Motrin 3x daily. Labs pulled. MRI of lumbar area ordered; MRI clear. 2nd Moderna shot.
Through next week the Pins n needles / burning / tingling now spreading to other parts of body, particularly left upper torso/neck/arm. Stabbing pains in sides and right ear. Hyper sensitivity all over. Clothes and sheets almost unbearable particularly when trying to sleep; unable to sleep more than 3/4 hours.
Go to immunologist. Mucho questions about COVID history (no known infection) and allergy history (no med reactions as an adult but did have anaphylactic shock post penicillin injection as a tiny kid) and COVID vaccine dates entered in chart. I had first Moderna shot week or two before onset of symptoms. Chest x ray clear. Immunologist requested to follow up post neurologist appointment.
Back to PCP same week as immunologist. More labs pulled. Ear infection diagnosed on right side by presence of redness and pain at palpitation. Drops and internal antibiotics scripted. Interestingly I’ve never once had an ear infection before. Previous labs showed slightly low vitamin d and folic acid. Vitamins obtained. X ray of hips ordered. More labs ordered. Trazodone scripted to help me sleep. No pain meds scripted.
Same day started PT. Post PT crippling pain in hip, upper front of thigh and lower back.
Lab reports come in. Inflammation markers from labs elevated in several areas. I can provide specifics if anyone asks. ANA and rheumatoid factor negative. Overall body pain and nerve pain (pins n needles / burning sensation) varies from still uncomfortable despite continuing Motrin to crippling pain (ie barely able to get out of bed).
Decided to change PCP to internal medicine specialist MD at another practice. At this point I’m also having shivers…like the feeling you get prior to having goosebumps pop up or when you’re cold. But I’m not cold or getting goosebumps, just random shivers. Also getting a twitchy, twinging sensation throughout my left leg (on the inside of leg mostly). I’ve been able to look at the offending leg as I’m feeling it and there is no visible twitching. All of my joints are popping; every time I move something pops. This dr scripts gabapentin, more muscle relaxers, advises to continue Motrin and requests follow up after neuro appointment.
I’m a little woozy feeling on the current medication regimen and I’m still having body pain and nerve pain. Though nerve pain seems muted enough that I’m not jumping up shaking my right leg and/or left arm out all the time. I’m unable to work. I’m not safe to drive more than 15 minutes or so. If I walk or sit upright for more than 15-20 mins symptoms increase in intensity. Standing about the same. Holding my arms up is similar, like I can’t hold a phone up to my ear for more than a few minutes; ditto to trying to type on a keyboard or hold a steering wheel. So I’m on a merry go round of different body positions trying to not be miserable. I am exhausted and mentally fried.
I’m still waiting on results of hip x rays. Hoping to have those today or tomorrow.
Thanks to anyone that made it through that novel. I’m very open to any speculations or experiences as I wait on the Nero appt.