Exactly.
So we went up to Atlanta, and with the very first test the CT, (once again) we were told that Jennifer was not a match. It was difficult because Aiden was in the middle of his appointment at clinic, and the surgeon walked in. He said something like:
“Jennifer we thank you fro the beautiful offer. It is very nice of you. You are a very good friend, and a wonderful person. Your liver is the perfect size. Couldn’t fit better. However, we were able to measure your ateries and they were much to small for Aiden…”
We were so sad. I kept trying to keep positive. But we all had a good cry. Even the coordinator had a tear. (she said we were making her cry.) As the surgeon left the room, I said. There is one thing I learned about riding: You need to get back on the horse after a fall. There is no time to be sad right now. Aiden is doing so wonderfully! SO we look at our blessings we have today.
Aiden is doing well. He has been going down hill a little. But it is slight. He hasn’t gained weight, and his ascities is now perminent. The have doubled his lasix to 20mg a day. But we still have the peld of a 40!! That means that Aiden has HOPE! And we have hope! He is so happy too! What a little fighter!!
SO THANK YOU SO MUCH for the posts. I read them and wept. I could never stop turning to my friends here at COTH. This is what has kept me going. I appreciate Erin and everyone bending the rules to continue with this topic. Aiden will make it through this. I know it.
Okay the next steps:
We are now testing our very own COTH member : knowonder. She it will be neat becuase she can update from first person perspective. Sara, has been a wonderful friend during this time. We met here at Coth and she was able to meet Aiden in person when he was sick over Halloween.
I do not know what the timing is on the testing. the holidays actually delay this. Hopefully we will know soon.
We are waiting and waiting. The said they can call us anytime. We could get a call today for a liver, or not one at all for months. So let’s just pray that Sara is the match. (I have a good feeling about this… mother’s intuition) And Aiden has a wonderul new year and new life ahead of him.
I have recieved emails from a few people. I am going ot be emailing each of you back. Thank you so much for the wonderful gestures. Don’t worry Correen I am too tall and fat too!
haha (needed that laugh!!
) It WILL happen. We are just being tested right now. (boy and what a darn test it is!)
The Hawk family loves you all! XOXO
Lisa
Save a life, be an organ donor