Aiden update.. Posted Pictures! Must end the Aiden thread. Aiden is doing excellent. THANK YOU COTH!!! (137) 1/23

Aiden, you never cease to amaze me! You’re one tough kid!

Lisa and Joey, he’s going to be trouble once he’s older

So glad to see the wonderful news!!

I mostly have been quietly following along – thanks so much for taking the time to update us.

We’re jingling down here for real now – I’ve never owned a curb chain before – I’m not allowed near my horse with a Pelham , but when I was in the tack store today, she had one left that was not attached to a bit. I bought it as an after holiday present to myself and have been wearing on my wrist all evening.

They make the most WONDERFUL jingling noise!! Every time I hear it, I am reminded of the wonderful community of support that exists here and I think especially of Aiden, Lisa, Joey, Sara and the donor family and send good and healing thoughts winging northward.

Many more jingles coming your way!

Libby

Go Aiden!!! Enjoy your new found freedom Hawks!!

May this be the beginning of many more for you all to enjoy. A wonderful Christmas present to you and may Aiden enjoy the miracle of Christmas

Gold

Coloured Horses…Oh My!
http://www.trinitybreeders.on.ca

<BLOCKQUOTE class=“ip-ubbcode-quote”><font size="-1">quote:</font><HR>Originally posted by Spot:
Oh Lisa - hang in there my friend…

What turmoil you have been through in the last few months - incredible highs and incredible lows and everything in between.

Aiden WILL swing on those swings in the park, and scrape his knees on the slides and come to you crying and ask you to kiss it and make it better.

He will give you heart failure climbing trees and ask Joey to make him a tree fort and pull up the ladder so no pesky girls can bother him up there.

He will grow into a fine young man that you and Joey will be SO proud of one day, and will find a special lady to share his life with a few years later and start his own family.

One day you WILL be grandma and grandpa to his children and you can sit and reminisce about what has gone before you all, and how far you have all come.

Lisa - he is a fighter - you have seen that with your own eyes each and every day and he will fight this battle equally as well and equally as strongly.
There may be some blips along the way, but he will come through.

That, my friend, will be the miracle of this particular Christmas for the Hawk family

“Spot”

{{{{{ HUGS to all … }}}}}<HR></BLOCKQUOTE>

AMEN TO THAT… Couldn’t say it any better myself!!!

Praying harder than ever!!!

-Shannon (Canadian Eh?)
Horses: Jodie (MardiGras) CLYDExTB and Spring (Evermore)ISH

Finally got my lap top up and running. (Lisa, Joey and Aiden are here sending you this update and Christmas message)

As we sit here in the ICU room, I can hear the beeps of his 17 monitors and pumps. There is a soft blow of oxygen pumping to my litle baby giving him the strength he needs. It is Christmas eve and we sit here looking at the Christmas gift we have hoped for, for months.

When I found out I was pregnant, I was so excited. Most of you remember my not-so sly post about how I should tell my husband I was expecting. I was to give him a son. I did not know he would have this amazing grin, and I didn’t know he would be so special. I did know my hopes and dreams for him were endless.

When I went into labor, Aiden and I were a team. I went into the hospital on a Wednesday and Finally that stubon perfect baby was born on the Friday. April 19th. I remember holding him and looking at his beautiful skin. He was like a china doll. SO white and rosy. By day two the tones changed and my baby was not going home. They told us that he had jaundice. Well I was sad that I was discharged and he wasn’t, but I knew jaundice was not a big deal, so we just waited paitently for the now yellow baby to come home and turn back to that pink and white baby I held at birth. When the doctors came in and told us that he was sick, but they didn’t know what it was, I was scared. Then I asked the question that still rings in my ears. I asked, “Could it be fatal?” Then our specialist looked at me and said yes. He said, “If Aiden has this rare disease his only chance at life will be from the gift of another. He will need a transplant to live. He probably won’t make it past the first birthday with out it.”

Joey and I cried. I remember crying and crying. I was so furious and angry I even tried to kick the wall with my foot. OUCH! Not such a good idea since I had no shoes on. It was just too overwhelming. I was this new Mommy trying to fgure out nursing and how to COVER the pee pee with out getting sprayed. Instead they were telling me I was now the mommy of a child with special needs.

It seems like I never heard good news from that day forward. Joey and I kept hoping that he didn’t have Biliary Atresia, but he did. He had it, and he was very sick. (notice I say HAD) I held my son through infections. I laughed as I watched in his first bath time. I was there when he had surgeries. I even held him in the back of a speeding ambulance with blood covering my sweet child.

Through all of this I shared with my friends online. I told them of our struggles and of our little victories. Aiden inspired people to comitt to organ donation and inspired people to have faith. Every step of the way I was able to share that first jar of carrots and the first time his PELD score was bumped to the top of the list. What a ride. I am so glad you have taken it with me.

But now here we are. Months have gone by while I waited to see that little new born with his pink and white skin. As a new mother I craved him. I needed to see that vision of health. I wanted him to come back to me. December 21st, 2002 my son was reborn. He was given a fresh new start. He is now my pink little angel all over again. He is finally home in his mommy’s arms. He is back. I promised him I would get him healthy, and we did it. He is back. No more cholangitis. No more bleeds. No more disease, and no more talk of seeing his Lord in Heaven. No more talk of him leaving us too soon. My sweet mittle baby is now in my arms and he is the one I have loved though all of this, and the one I am now going to be blessed to have for the rest of my life.

Things are not easy right now. I have seen him drop in his oxygen twice now, He cries in pain, and he has a long road of recovery. His fight is changing, but also just begining. I know we are up to the challange. And our faith and love as a family is now stronger.

Last Christmas, I remember hoping that the child I carried would be blessed and have a full rich life. God gave me my Christmas wish. I want to hold him and take his pain from him. But like the other bumps and problems, this too shall pass.

God bless our donor family. May their special angel be sitting on the lap of Christ watching over my son with a smile. Thank you for my beautiful COTH friends. Thank you for helping me fight this battle. The war is not over with. Let’s hope for him to be awake and alert soon. Hope for no more pain, and pray for no rejection or infection.

I will kiss him and tell him How special everyone thinks he is. I will tell him all of the beautiful things you say. I will begin on page 1, telling him about his gift of life.

OHHHH wait… DO I hear bells jingeling? Oh yes! I think I see Santa! Hey Santa, no need to come down this chimney, You gave us our gift. Our precious Aiden has come back to us.

XOXOX Merry Christmas.

Lisa
Save a life, be an organ donor

lovebear.jpg

<BLOCKQUOTE class=“ip-ubbcode-quote”><font size="-1">quote:</font><HR>Originally posted by EqChick:
I have also had a collapsed lung, when I was younger - acutally happened at the barn (not from horse or accident, just noticed it there). Mine was from a pneumo thorax, which is air leaking outside of the lung into the chest cavity. <HR></BLOCKQUOTE>

Yep. Sounds like a spontaneous pneumothorax - just like me - caused by blebs (blisters) in the lung popping. Are you tall and thin, with a large growth spurt as a child/teen? That’s the typical scenario. You’re lucky you didn’t have more of them.

<BLOCKQUOTE class=“ip-ubbcode-quote”><font size="-1">quote:</font><HR>Originally posted by EqChick:
I am fairly certain Aiden does not have air leaking as far as I know - for his type of collapse air just leaves through the esophogus like when you breathe out. It happened slowly (well - as compared to if you popped a balloon - that’s not what happened), and started last night with collapsing alveoli. … That progressed to an entire lung collapse - at what rate I’m not sure - and resulted in everything turning for the worse at a certain point. Why that has happened, they’re not sure. I assume that also makes re-inflating a challenge, since they are still trying to diagnose the problem.<HR></BLOCKQUOTE>

Yep, it’s gotta be hard to fix something when you don’t know why it happened!

<BLOCKQUOTE class=“ip-ubbcode-quote”><font size="-1">quote:</font><HR>Originally posted by EqChick:
I’m not sure if any of that helps out at all, maybe helped me more than readers - eh, Zephyr? I will keep you all posted with any information I get.<HR></BLOCKQUOTE>

I don’t know about anyone else, but it sure helped me!! I feel like I understand as well as I can now. Thanks for coming back to post specifics.

-Zephyr’s Mom

http://community.webshots.com/user/sharon_kenney1359

http://www.ZEGifts.com

Glad to hear he’s home!!

We are still on the course, clear with in the time allowed. Everybody grab mane, eyes up. Let’s get it done.

Go Aiden!

We loff you.

Well, that is neat! Thank you for letting us all know! You enjoy this Sunday, Sara, and also all Aiden’s family too! We continue to pray for all involved, whether in Atlanta or on this Board.
love June

(that’s not actually what I said outloud when I read the news, but I can’t post it…)

And I thought I was having a bad day…Puts things into perspective.

Lisa, you and your family continue to be in my prayers.

“If toast always lands butter-side down, and cats always land on their feet, what happens if you strap toast on the back of a cat and drop it?” --Steven Wright

WooooooHooooooo

Look at Aiden go

Yes, RzB, that was an awesome idea…I was having a hard time finding the update post, as this thread seems to grow exponentially!

Anyhow, what great news!!! Go Aiden!

visit www.victorianfarms.com

Thank you Lisa for posting again. Like someone already said you have your priorities in place. I’m thrilled you can enjoy your son as God intended. God bless you Hawk family.

hitting “refresh” over and over again - C’mon, I know I’m not the only one - waiting for an update, come join us over in the COTH Aim (AOL Instant Messenger) Chat. Just IM me (Frebird TMH) or email me (pofarm@bellsouth.net) for an invite, or just c’mon in!

Go Aiden Go!!!

Come Join the Nightly COTH Chat on AOL Messenger (AIM) IM me for an invite, or C’mon in! (The room is COTH Aim Chat)
***Looking for that special horse?? Get an Exracer!!!
http://www.canterusa.org/

<BLOCKQUOTE class=“ip-ubbcode-quote”><font size="-1">quote:</font><HR> You have a completely different life now. Your baby has a completely different life now. It’s almost as if the sick Aiden did die, and the real Aiden who was hiding within that shell has emerged. This is such a gift … it has been given to you with conditions - its power doesn’t distinguish with Aiden, it ignites with Aiden. I’m anxious to see what you and Joey do to make sure it always burns bright. <HR></BLOCKQUOTE>

Throughout this thread, I’ve laughed, cried, worried, prayed, and celebrated with each new post. It has been an amazing journey and has elicited emotions in me that I never thought were possible considering I have never met Lisa, Joey, and Baby Aiden. However, nothing has touched me deeper than Robby’s last post that I quoted above.

I guess it is because I firmly believe that inside each and everyone of us is our true selves struggling to emerge. Most of the time, we never allow this to happen because of past and painful experiences or fear of what might happen in the future when it does. To be able to be a small part in the real Baby Aiden’s “emergence” is an experience I will never forget and I will carry it with me always.

A dog has one master, a cat has an entire staff.

…And tell that doctor that there better be some kind of medical reason for Aiden not to be on painkillers - and you want a second opinion.


“It’s a thin line between a smart TB and a smart-@$$ TB.”

Such a fabulous Christmas gift for everyone involved.

What a scare over Knowonderwoman! Glad to hear that you followed up on her as she would have done for you.

Thanks for taking so much time to keep us all abreast of the situation when you and Joey must be exhausted.

Many hugs and kisses for Aiden and the tiny blessing that holds us all together.

Friendship is Love without his wings
-Lord Byron

I am so amazed by that wonderful childs strength…not to mention you “Lisa and Joey”!! Aiden is so lucky to have such unbelievable parents. And you are SOO lucky to have such an UNBELIEVABLE child!
I could not imagine a better Christmas gift! I can’t imagine what his billi count was up to at his worst moment. My daughters shot up to 24 and I was pretty darn scared. 1.4 sounds absolutely WONDERFUL!
What a little fighter you have. Good luck when he is on his feet and running…He’s going to be a handful!!! I’m sure you’d chase him around this earth just to finally be at that point! We love you all so very much…and I’m just waiting for the “pink” pictures of our wonderful little man!
Have a wonderful Christmas Eve…and even better Christmas and an ULTIMATE NEW YEAR!
Merry Christmas/Happy Birthday Aiden!
Natalie
(and HJRider ~ Darci ~)

“A horse is a horse of course of course”…This person obviously never met MY horse!

If things are tense in our cyber waiting room, I can’t imagine what things are like in the real one!

When there’s no news, perhaps updates can be simply “We’re still here! Keep jingling”.

Hoping they find the answers soon!
Fingers crossed for an informative CAT scan.