[QUOTE=HillnDale;6668317]
When I was uninsured and working around nutty horses I used to give more than passing thought to a marriage of convenience: path to citizenship in exchange for tech company healthcare plan. Now for some reason I’ve been able to continue coverage from an office job but am working with horses full-time. I pay for it, but I’m terrified to lose it. One of my concussions occurred while riding a bad actor when I had no coverage. Not fun.
Definitely don’t be afraid to ask for help high and low. You never know where help might come from. You probably know a number of people who take prescription migraine medication. Find out who they are and talk to them.
I think there are generic triptans now. Ergotamine is an older drug that is quite effective and should be dirt cheap. Be careful of prophylactic meds that could confound your other symptoms - confusion, fatigue, dizziness.
Frozen peas. Time.
This is not your life from now on. Just for now. This is what accidents do.
I’ll be rooting for ya.[/QUOTE]
Is ergotamine prescribed prophylactically? I’ve only ever been given it acutely, like, in the infusion clinic in an emergency. I don’t think it’s prescribed as often as the triptans because the side effects can be more severe and it is seen as less effective overall than the triptans, but it certainly is cheaper and can be effective. There are generic triptans; I take one in the case of a bad migraine.
DazednConfused – I don’t know where you are located (sorry if you already mentioned this), but with regard to finding a good neurologist – I am lucky enough to be in MD and go to the Headache Clinic at Hopkins (yes it is actually called that), and my neuro Jason Rosenberg is WONDERFUL – i would suggest calling them even if you are not in the area, because they will be able to give you a good recommendation for a neuro that is in your area (for example, I am planning on moving soon, and they have given me a list of neuros in the areas that I would like to move to).
I would hesitate to be so alarmist about the increasing headaches post-injury (although DEFINITELY go see a doctor), because personally (and I know this varies by person), I will get migraines if my routine is thrown off – even something as little as too little sleep can give me a bad migraine, or eating at a very different time (yay my life!). So I can imagine an accident could trigger migraines the same way, even if it’s not actually a physical brain injury that is causing the migraines. I also tend to get “trapped” in cycles of migraines, for weeks at a time, and that sounds similar to what is happening to you. I go to the infusion clinic (same as you would for something like lupus or chemo), and get treated with a “cocktail” of drugs that my doctor dreamed up (it does work, but it’s a bit alarming how many drugs they give me – the last time I counted, I think it was like 10?)
And oh, for ANYONE, if you have a terrible migraine I would call your neuro or the neuro resident on-call (your hospital should have someone even if it is at 3 AM, I know because I have called at 3 am before!) BEFORE going to the ER. I had a NIGHTMARE experience in the ER where they just pumped me full of Dilaudil (AKA hydromorphone, which… serious drug, don’t wanna take). Apparently 10% of the population (according to my poor ER attending that night) reacts very very badly to opiates. I am in that 10%! I literally had a severe panic attack FROM the opiates, and respiratory depression so bad they put me on supplemental oxygen. In conclusion this does not happen to everyone but my neuro thereafter impressed upon me the importance of calling him or his office before going to the ER next time. And now I irritatingly tell everyone, so, y’all are welcome :winkgrin:
For me, what has worked the best is NOT the triptans or the anti-depressants (I was on Nortriptyline, it was OK, then I was on Effexor, which oh my god, I don’t know what was worse, being ON it or weaning OFF of it over months), but actually treating the accessory symptoms with anti-emetics. I tend to have unrelenting, violent nausea when I get a migraine (like 11 on a scale of 10), and I take either Metaclopramide or Ondansetrone; clears up the nausea, makes me a lot less unhappy and stressed and seems to make the actual headaches less severe too. I am not sure if the nausea thing is common (like, I have days where I actually can’t move), but it’s something to keep in mind.
Putting something cool on your forehead does not always work – sometimes a warm washcloth is actually better, so experiment until you find something that works for you.
I might suggest keeping a headache journal for a couple weeks – note what you ate, how much sleep you got, etc. I know that I need caffeine (like, my doctor literally wrote me a prescription telling me to have caffeine every day, because of the vasoconstriction), red wine (common trigger) gives me headaches, I NEED a certain amount of sleep to function, and getting dehydrated (and I get dehydrated very easily) will immediately give me a migraine.
I think the main thing with migraines is the frustration and the feeling of helplessness. I had a period where I actually became capital-D Depressed and anxious because I just had these unpredictable, awful migraines. I would wake up thinking, “am I going to feel like s— today?” and it was terrible. Working closely with my doctor and trying to identify what personally makes me feel better and worse gave me a sense of more control and less futility, which I think helped a lot.