It looks like my doctors have figured out my lung issues and I am starting to get better but I have a long way to go. It seems that my CLL has infiltrated my lungs. I’m taking Brukinsa along with my monthly IVIG.
On 4 l/min supplemental oxygen my exercise tolerance is little better than nil and I am very weak. I have lost almost 40 lbs and it was mostly muscle. I am walking and trying a bit of very light resistance training.
My doctors have suggested pulmonary rehab. Any other ideas?