Well, my saga is coming to an end for now.
I had my follow-up appointment with my orthopedist today. He basically gave me the same 30-second spiel about “activity modification” and OTC pain meds that he gave me after surgery. He spent another minute or two going over the photos from my scope, which basically show an area of inflamed, roughened cartilage on the surface of my acetabulum which is presumably the primary source of my pain. All of my questions basically got the vaguest of answers.
Q: Besides Tylenol and Advil, are there alternative medication options for pain management? Are cox-2 inhibitors a good option for treating human arthritis? A: Variation in response to different drugs is so individual that you’re best off doing further trial and error with OTC meds and having blood work done by your PCP every 6 months to make sure you’re not damaging your liver or kidneys. If something hurts so much that it can’t be controlled by OTC pain/anti-inflammatory drugs you should consider discontinuing it.
Q: Given years of asymmetric strength before the pain symptoms developed, could there be some structural or functional asymmetry in my body that is contributing to the early arthritis/likely to make it worse? A: It’s not impossible, but a simpler explanation is that you’re genetically predisposed to cartilage degeneration (NB of 15 relatives who are at least 30 years older than me, only 4 have significant osteoarthritis and only in hands/feet, but I was interrupted when I tried to ask if genetic factors would be likely to show up in my family medical history)
Q: Are there any specific exercises or PT activities that I should be doing? A: Maybe go to PT for stretching to reduce post-op stiffness and to stay on top of core strength, but if earlier months of PT didn’t help it’s not likely to help now.
Q: Is there any strategy for comfortably returning to activities like riding, hiking, and running, considering that I’ve had poor pain control with OTC painkillers to date? A: “Horseback riding is low-impact so the only reason it could cause you pain is from the position it puts you in. You should be able to solve that somehow. You’re lucky you’re not a basketball player.” I got totally cut off when I tried to explain that some types of riding are not low impact. Ideally I should discontinue all high impact activities and replace them with elliptical machine exercise or swimming.
Q: How should I follow up with my new healthcare providers after I move? A: You don’t need to be in contact with a specialist. There’s nothing that can be done until you need a THR. That’s a long way off so this is a matter for primary care now.
I was clearly getting hurried out the door. He was having a bad day – he told me more than once that he didn’t get much sleep last night (Me too! There’s this hip pain that wakes me up most nights…). It’s taken so long to get the PT thing sorted out that I will maybe get one visit before I move. I get that the orthopedists can’t personally manage every case of osteoarthritis in our community, but I’m disappointed that there’s so little interest in finding a better approach than Advil for a young, active patient.
So I don’t ever expect to run again. I can pretty much choose between being active during the day or sleeping at night, and that’s with regular use of both Tylenol and Advil. Most bothersome is fact that I have worked my ass off and given up a lot of other things to have a talented horse progressing in my chosen discipline, but I can’t ride effectively or comfortably at the level we’re otherwise both capable of.
So it’s come full circle – I’m right back where I started. Fingers crossed for decent insurance and better care out west…