Update it's getting better

Infectious disease dept and pulmonology disagree on the significance and treatment of the bacteria.

Getting IV iron

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Oh my goodness! I hope they come to an agreement soon so you can start to feel better soon.

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So far pulmonology is winning. Not going home today.

Waiting for a transfusion

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Oncology wants to get rid of me. I feel like an unwanted puppy

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Hugs and jingles!!

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@Graymaresrule they might kick you out there, but we need you here! Sending positive thoughts your way today!

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Thanks. Looks like I’m staying at least over night

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Thanks to an unknown blood donor I received one unit of packed cells. This is a first for me but uneventful

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Yay for those who donate!

Hang in there @Graymaresrule! We are pulling for you!

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I’m feeling better and out of the hospital.

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Yay!!! Still jingling madly for you @Graymaresrule!!!

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That’s wonderful! I hope you are able to rest and continue healing.

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I’m home and feeling much better.

I just got a report that Aspergillus fumigatus grew out on one of my sputum samples.

Fungal hyphae were seen on the samples from my bronchoscopy last October but the infectious doctor dismissed it saying “every body has fungus in their lungs” Because it didn’t show up on any culture.

Three different radiologists have said my CT scans look like a mycobacterial infection but nothing culture out. They are notoriously hard to culture. Different infectious doctors have recommended against treating that.

Gram negative rods aren’t significant either.

I’m frustrated.

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I would be too. Are they going to treat it now?

I’m glad you’re home and feeling better!

Don’t know yet. This report just popped up this morning.

Hemoglobin was 7.1 before the transfusion, 9.8 after and 11.2 today so good news

And the rest of my CBC looked mostly NORMAL

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Glad you are hanging in there @Graymaresrule! Still jingling for you!

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Nice to see those numbers going up! Hope you are feeling better also.

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Glad you had some good news!

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Sending you jingles, white light, and prayers.

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