I’ve been on my new med for6 months. Back then I could barely walk from my chair to the bathroom.
Yesterday I did ( 3 )2 /2 minutes on my elliptical at half speed. I’m still very weak and down 40 lbs but it’s slowly getting better. I’m still on 3 liters of oxygen per min and coughing up a lot of mucus but that is slacking off too
I’m glad you are doing better!
Good to read of improvements, can’t imagine what it’s like living with this.
It’s been tough for sure. I’m at the point of feeling well enough to want to do things but have to be careful.
I’m on IVIG and brukinsa, A targeted therapy. I really didn’t want to go on it but I’m glad my oncologist convinced me. My blood counts will never be normal but they are getting better and I even have antibodies to the spike protein
Glad to hear you are okay! Sending more jingles your way!
So glad you’re improving!! I hope it continues.
Me too! I did two three minute intervals on my elliptical this afternoon. A month ago I could do 15 seconds.
Now I have to start resistance exercises.
I alternate between wow three minutes and darn I used to do 45 at more than twice the speed
Thats wonderful!
Spoke to soon. In ED
Jingles.
I’m sorry! Hope you’re feeling better soon!
Jingles!!
Jingles!
!y hematocrit is down to8. Seven rates a transfusion.
They want to repeat the bronchoscopy they did last October which didn’t yield any actionable results and darn near killed me. Only slightly exagerating.
The radiologist thinks I have a mycobacterial infection but they ate hard to culture.
At any rate the oncology floor at UVa is very nice
Woohoo something grew on the sputum culture! Now we have something concrete to treat
I hope it responds quickly to meds!
I hope you get some relief soon and feel better.
Still leaking somewhere. Hemoglobin 7.5Gram negative rods from culture
I hope your doctors can get everything under control. How frustrating it must be for you.
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