My husband has cancer and I'm really struggling

Enjoy your weekend! I’m a fan of Door County Candle Company, I learned about them due to their fundraising efforts for Ukraine. They offer some candlemaking opportunities, might be a fun and different thing to do.

I will be thinking good thoughts for you both!!

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I don’t swing through this forum much so I’m just now seeing this. Wanted to say I’m so sorry but hopefully everything will go well and he will be happy and kicking for many years to come :slight_smile:

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Oh yes. I was told that taking a specific horse dewormer would cute my husband’s liver cancer. But DON’T tell his doctors he’s taking it because they won’t believe it will work and tell us to stop, because they want to make money off the expensive treatments. She meant well…

I didn’t mention this to my DH’s oncologist…he was probably still recovering from my asking whether all the kale we eat could be protecting the cancer from the chemo :upside_down_face:

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Guy on the Bladder Cancer Awareness Network FB page said apricot kernels would cure the cancer. I’m sure oncologists get asked about a lot of off the wall stuff out of pure desperation.

We see oncology tomorrow morning. I’m nervous but we just want to get this going. There is too much waiting involved in a disease where every day feels like too long to wait.

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Please let us know when you can what happened at the dr and how BOTH of you are doing.

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Yes but I need to join still. I am a very reluctant member of a group I don’t want to be a part of :confused: Sometimes I try not to think about it and discussions on fly boots or other silly things are good distractions.

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Thanks so much, rockymouse!! Yes, life has certainly moved forward! Sure hope you’re doing well, just crazy how time flies!! Still got the menagerie–horses, cows, dog, cats. The whole catastrophe!!! :laughing::laughing:

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Dewormer, apricots, kale…oh my!! I remember digging my nails into my palms and reminding myself, " they mean well, they mean well…"

Good luck with the oncologist. One hopes they are a rock-- steady, INFORMED, available. They’ll have the game plan.

I asked a billion questions, Mr. Tiger asked none. He had BC so plenty of groups (for women,anyway) and I joined a bunch and researched and all that. He did not. He did not care to know and figured he’d have whatever experience he was going to have. I’m not that laid back ( at all) and did fight to get him to a better oncologist (with lots of support from coth) he didn’t care that I researched, just he wasn’t going to.

I hope you do come here to vent and get support. It’ was a fabulous place for me to process stuff I could not with him

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This is the worst part for me. Hugs to you both!

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@lilitiger2 Your husband also had bladder cancer? Did he have his bladder removed?

My husband is emphatically trusting of medical professionals. I’m always questioning and doing my research and pushing things. I so get those roles. UW is good and the oncologist specializes in the urinary tract cancers so I’m grateful we have access to good providers.

@Joanne you had kidney cancer? Omg! That’s a tough one. So glad you are here to be a part of life yet. :two_hearts:

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When I first made this post, I was hesitant. I’m not super “out there” on this forum and not the savviest rider or most experienced horsewoman.
I wasn’t sure anyone would even respond. You have all helped me so much more than you know. The words of support, the shared experiences, taking a moment out to read our story and offer encouragement are beyond what I expected. It’s so much appreciated.

I do have a wonderful mom, brother and my two great stepsons. A few close friends I feel like I can ugly cry with, and a supportive team at work. We have good health insurance and I am grateful for all of those things we take for-granted. I will take a boring life any day over fighting cancer.

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I think it’s harder to be the caregiver than the patient. The pictures of you and your husband are adorable. You can see the love you two have for each other in the pictures. Please keep us posted, lots and lots of people are rooting for you.

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Sorry, no. He had breast cancer.
Stage 3 and then stage 4.
It was a long journey, all chronicled right here in n coth in 2 loooooong threads. Pretty much all the “yay we got good news” and “oh no!” Days. I do not think I would have made it without coth.

Yay for good insurance and good docs whom you trust!! And yay for supportive families and friends!

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jingles and support

My dad has bladder cancer although I’m not sure what kind. It has definitely been an interesting journey for my mom. I don’t have anything particularly useful to say other than just support and good wishes.

Thinking of you!

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Omg thinking of your dad as well!! Let me know what you find out. I was so hoping ours was going to be limited to the bladder lining so it could be treated by intravesical chemo and preserve the bladder. Hoping that is the case for your dad. :pray:t2:

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Thank you! He had some sort of infusion that was based on a virus and not traditional chemo? I think it was experimental when he first did it (that was…maybe 3 years ago now). So far, it has been working well. I knew all the details when he was first dx but I have since forgotten them. He’s been doing well. We’re holding our breaths for his latest recheck but hopefully all turns out well. Saving the bladder was important to him too!

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Thinking of you and your husband today. I hope the appointment with oncology went well and that putting a plan into place is allowing you to feel more secure.

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The appointment went well, but we have a few hurdles. The good news is staging is stage II with no lymph node involvement.

The bad news is my husband has pre-existing conditions of hearing loss and afib. One of the chemo medications is known for causing hearing loss so he has to have an audiogram next week to get a baseline. Chemo is tentatively scheduled but may need to be stopped, in which case we would move directly to bladder removal and the immunotherapy such as Opdivo post op.

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I think I would be more concerned with the afib than the hearing loss, although both suck.

They told my husband there was no lymph involvement also, and for the surgery they had to cut from the breast bone to the public area . They cut a little too high in error and found cancer in a lymph node in his chest. The surgeon called the oncologist right then to the surgery.

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I know I am definitely concerned and I have emails into oncology and I did email his surgeon. Sounds like we will give it a go for round 1 and if anything is nefarious we stop immediately and move to surgery. Surgeon confirmed he is a candidate for minimally invasive robotic surgery so that is good news.

He can do Opdivo or Keytruda after surgery, possibly with a different chemo med.
I did see there is FDA approval of bypassing cisplatin for patients who can’t have it so of course that is what I asked oncology about. They’re gonna hate all my questions.

https://www.oncologynewscentral.com/article/fda-approves-enfortumab-vedotin-combo-for-advanced-or-metastatic-urothelial-carcinoma

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