I’d originally posted this on Off Course, and people suggested I come over here to see if anyone was familiar with it. I was diagnosed with MG this past year. So far, I have mostly just ocular symptoms — like seeing double, which truly is no fun! I also have some muscle weakness in my legs. I know it’s an unusual disease, but I was hoping that there might be someone else who can offer me some firsthand knowledge.
I don’t ride anymore (gave that up after the realization that, since I have two artificial knees, if I fell off my packer mare I’d probably shatter my leg since the titanium wouldn’t give). (Actually, I trail ride a couple of days a year on a lovely little mule owned by a friend.) Heavens, can you imagine a double vision attack while trying to jump a fence? I wouldn’t be able to tell which was the REAL fence and which was the not-really-there one!
I’m on pyridostigmine, have upped the dosage on it fairly recently and will probably be upping it again after I see my neurologist on Monday.
The uncertainty, and never knowing when I’ll have vision problems, or my legs will get so weak that I have to sit down NOW, is a real problem for me. And even though I don’t generally ride anymore, I keep super busy showing two of my dogs in obedience (and vacuuming dog hair…) I’m lucky I can still work and have relatively good insurance, and a great team of doctors.