You know, you are right about docs. They aren’t used to a pragmatic outlook - they are healers and I think that’s what they want to do and want us to want it, too.
I am much like you - a bit of a loner, though the few friends I do keep, I like to be with a lot :yes:
I love the idea of folding up the country a bit to get us all closer! That would be an awesome wish all around! You would probably get a little sick of company, lol. I could visit my sisters much more frequently. I don’t travel from here really at all anymore as I am the close contact/care contact for my parents (89 and 85 this year). So I stick close to home and that suits me fine, really.
You stick to your wishes and do the things that please you. That is really what it boils down to you and then you can say you did it your way - the best way to be!
Just you saying that means so much. He sounds awesome. That personality type is a dream.
And what is it about those puffed mints, Truman liked those but not the hard ones. I still think it is funny horses even like Mints. He preferred Sugar cubes. I was never one to feed that sort of thing for treats, but once I did, I just kept feeding them.
Reefy, even if it was to spend some time with all of you on this thread who are so wonderful and have been a Godsend I would not get sick of that.
Funny, I told my farmer lady friend Deb, She would kill me if she knew I called her that! Super wonderful lady, my age.
She grows the best veggies. and Raises her own beef.
I met her several years ago just at the farmers market. When I told her she was so incredible, mind you we are just casual friends. But she did not get the OH I’m Sorry face, and Oh why are you not doing Chemo.
She said Kim with your good attitude you may do okay. I said, Well I have no idea how long I have, she said Who does? She will be at the Mrket Friday morning, I thought I wold show up early and bring Coffee for the both of us.
She said if she found even one Tomato that was ready she would save it for me. :yes:
Oh that is funny…
Well the truth is Trumans First love was Bananas. Not under ripe, but almost too ripe for people.
He got this face, and he would stand quietly for an hour while I braided.
OH did I mention he sucked his tongue??:lol::yes:
Okay the thing I have not commented on for the last few days… WEll it is over now.
FIREWORKS. It has been so quiet, I have barely heard any. until tonight. The across the street lovely bunch, have set a few off, and with a lake just beyond them, well. the Echo is like it is in the living room.
I can deal, but Handsome has gone to ground. at the first bang. Won’t see him till the wee hours of the am.
Sevy it seems could care less. LOL
Oh gee The Goober just came into the office… Now it seems in his senile old age he wants me to comfort him.
I try. LOL Such a case. :):lol::winkgrin:
5 years ago I was in hospital, getting put back together after my fall, and my stay really kind of fixed my already held view about medics…
Doctors want to fix you, it’s their job, it’s what they do, sometimes it does not matter if the patient WANTS to be fixed, they just want to cut it out, zap it with chemicals whatever…fix it.
Nurses are more in tune with making you comfortable in the situation that you are in…
Oh how I hate fireworks! Your darned neighbors!! I like professional displays. On the Fourth. That is all. The barrage of blasts from neighbors? Nope. I must have PTSD from my fall, because I jump a mile in the air with the loud bangs. I need this part of the holiday holiday to be over.
The woman at the farm stand sounds lovely! I bet she will love it if you bring coffee for the both of you. Kim, you seem like you are a caring and kind friend. I think it sucks that you aren’t surrounded by people who reciprocate that. My sense is that they know you are strong and independent and, as you said, don’t like accepting help, so they’re probably baffled by how to help you. As BAC suggested, it might make you feel good to email a few of them. You could even suggest that you all have coffee or lunch. It might be the opening they need to know it’s okay to reach out to you.
Also, have you read the book Being Mortal by Atul Gawande? It’s an amazingly well-written, non-fiction book, in part about our personal, moral and ethical rights to refuse treatment and enjoy the end of our lives free from medical intervention. I think it would empower you, but I also think you don’t need much empowering.
Happy 4th Kim! I hate fireworks too, they are illegal in MA but no one seems to care so I just keep an eye on the farm so we don’t catch fire! My cat Divot hates thunder and fireworks, he too goes close to the ground. I usually find him in a corner in the middle of the house and when I pick him up he keeps all 4 legs tucked in. He is hyper sensitive to sound and has never meowed. He will purr up a storm though! His sisters Lola and Little Kitty could care less about fireworks. Anyway I hope you have a comfortable day! We are in the middle of a heatwave here that will continue until Saturday. I was soaked thru all day yesterday riding horses and caring for them. Today will be a slower day thank god!
This is the first year in a long time that I don’t dread the neighborhood fireworks. My dog was scared of them and it took days for her to be comfortable going outside after the fireworks ended. She was always expecting a M80 to go off at random when she went out to do her business. I put her down June 4th so I can at least feel good about since she doesn’t have to be so scared now. I still don’t like them, but at least I know it will be over in a few days. Some of my neighbors are arseholes.
The tomatoes are coming on where I am–so great to have them. When I go to the market on Sundays, I just want to buy a basket from every table! Kim, I hope you get a nice one from your farmer buddy this weekend.
As for the doc, probably also not accustomed to working with patients who are flying ‘solo’. Most people probably come in with family and the patient is interested in continuing treatment to have more time with family. I don’t know if people are more likely to accept treatments they otherwise would not if they didn’t have family. I suppose it’s possible–a big part of the calculus.
Heat wave is back on with a blast today.
Yesterday was not bad at all, not near as humid, and a nice breeze. This morning, I watered very early and did some weeding, by 9 am I was soaked. Ugh. And I was in the shade. LOL
Feeling not too bad. I am taking the advise of my doc and trying the Dex every 2 days.
So we will see. I actually felt quite good not having taken any since sunday. Surprising.
Okay food update. Still not a sugar fan, but I like Simply Lemonade. It has sugar but it has enough of a bite.
Go figure.
I seem to crave odd things. I have this baby dill pickle that I LOVE. Called Mount Olive pickle company.
I ate 4 of them yesterday. That and plain pasta with butter garlic and salt and pepper.
Weird huh! The Lake folk across the street did not carry on long last night. Which is great.
And too bad I would not mind so much if I could see them, but the darn oaks across the street you can barely see them.
Man I remember back I think 1985, 86 . I took a summer job galloping polo ponies. I can remember it being this hot. And getting raw spots on your butt from friction. But still it never seemed a big deal . of course when your 20 something and doing anything with horses, weather was never a factor.:winkgrin:
Stay cool you guys! (((((Hugs))))) Kim
Kim, great to hear you are doing well all things considered. Heat is never fun. Sounds like you’re idea of a good day and mine are about the same… inside with A/C.
Z, the last part of your post is something I completely agree with. In many respects, I am similar to Kim in not having many/any friends and virtually no family. I feel health management is something that could easily be influenced by having or not those family and friends.
I respect that Kim is making these decisions based on her choices and not letting health care professionals (who, I really do believe feel they are making appropriate suggestions and recommendations) drive those decisions. They want to help but they are not walking in her shoes.
{{Kim}}
Stay cool today! We’re forecasting 107 today and then > 110 through Saturday :eek: Maybe rain next week but we’ll see. One plus for Phoenix is humidity through Sat is < 20% :eek: We need the humidity to get some rain which we desperately need.
I am not sure if this will come across as morbid, but when my Dad was near the end of his life, under at home hospice care (for 8 months!), he had some really good days where he had an excellent appetite. We had been so used to watching his diet all of his life that it really surprised us when his doctor said, “Let him eat anything he wants! Cake for breakfast? Sure! Dessert before supper? Why not?” And then it occurred to us that it really didn’t matter anymore. I remember thinking it should be a sad thought, but actually feeling sort of happy for him. No more “Dad, that’s not good for you. What about some vegetables?”
So all of this to say, if you want dill pickles and pasta, go for it!
No not morbid at all. But I have an appetite, Just that my tastes have changed.
Mind you I was never a super sugaraholic, But I adored Iced cream in the summer, Now, Sure, I could eat it, But, not that jazzed. For the record, I always have had a secret pickle fetish. I used to LOVE the big one in the barrels at the local deli when I was a kid. I mean huge!!
But I am really all about some real tomatoes and cucumbers. A BLT is in the future.
I bought some of those Tomatoes on the vine today, I mean, please, they are red, and will be okay in a pinch. So maybe tonight I might make one.
Man it is so stinking hot out there, My garage is at the edge of the woods, and faces the road, I leave the door open and sit and just watch the traffic go by. It is a semi rural area, but there is a nice lake, quite large about 9 miles from me, And it is the area everyone goes to in this small town. Plus there is a race track just outside of the town of Crystal, that is a hot spot for many. And the traffic on a holiday picks up. A little too red necky for me, but hey, It is still quite rural and farm country, so it is not bad.
Wow, I never thought I would be an old person who would sit in their garage on a hot summer day with the door open, sipping iced tea, watching the traffic go by. :eek::no::lol::winkgrin:
