Oh wow! SPRING!! YAY! and Yay for the sweet smell of mown grass. We had crazy wind here too (so far have resisted the pick up stick part but there are plenty out there f or me to grab!!
) And yay for wonderful coffee!!!
I was thinking of you when I was doing barn chores today and these were my rambly thoughts in no particular order
- Of course, you don’t have to do a bloody thing. If t here is one thing my husband drilled in to my head, it was that he didn’t have to do anything and he certainly didn’t owe anyone anything. totally his path, his choices. so hard for me to remember when I had so many opinions about things!!! so these are just what I remember!!
2 That said, I found it helpful to think about all the things that needed to be done and to match them up with people. There were plenty who wantd to “do something” but didn’t know what to do. Many times the thing they hit on wasn’t helpful at all. It was better to give them something to do. for example, my mother drove us to many of DH’s doc appointments. it was really relaxing for me, to have a moment not to be “at the wheel,” she really enjoyed it, and my husband adored my mother. My stepdad did a lot of shopping for us, which was very helpful Because-- >
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sometimes–not always–it can be helpful to have someone else dealing with doc appointments–when, what kind of prep, etc. And it can be easier for someone else to keep pushing–NEED AN APPOINTMENT HERE! NO, IT NEEDS TO BE TODAY/THIS WEEK/whatever. That was something I could do and had no problem being pushy, which allowed my DH to be more relaxed. Not always necessary but something I remember was helpful.
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And these docs–oncs and palliative–were 24/7 so there was always someone available, particularly the awesome palliative care people–they were right on which meds were working, which weren’t, which needed to be tweaked. DH was definitely the total marine–pain is weakness leaving the body and all that–and they were wonderful with him so, as I mentioned, he could keep working, doing what he liked to do, for a long time. Longwinded way of saying don’t be shy about asking for stuff. 
My husband was far more good natured and patient probably than I was, as it seemed like as soon as people found out he was diagnosed they had recommendations–> my cousin’s aunt’s husband’s sister’s boyfriend was diagnosed with <something> and they lived on coffee grounds and rose hips for SIX YEARS and they’re cured!!! My nephew’s girlfriend’s dogwalker when to Bolivia and lived on cocoa leaves and lemongrass tea and she’s totally clean!!! I would get impatient with that but he w as really good about thanking them for their experience and their good wishes (I was more like, WHAT THE FRUIT BAT ARE YOU TALKING ABOUT?)
And yet, when I hear of others, I have to fight the same urge to make all sorts of recommendations!!! I guess it comes from wanting to be helpful, to somehow make our experiences meaningful!!
glad it was such a lovely day!! rain here tomorrow so I suppose I’ll actually have to clean 